Everyone should have an Aunt like Aunt Jayne. Jayne Aston..aka Aunt Jayne has become a dear friend of mine, I absolutely adore her. Jayne hails from Ontario, Canada. Not only do I love her blog, Aunt Jayne’s Blog, but she also has a website called Allergies- R – Us, where people with all kinds of dietary restrictions can network their blogs and exchange ideas, information and recipes. Jayne is also very active in the Celiac community, I truly do not know how she does it!
I am so very honored today to have you meet Jayne and have her share her amazing story. I now bring you Aunt Jayne….
Celiac – My Story
I was born premature and that was when we (My doctors, family and I) think my symptoms started.
As an infant, I was constantly in pain with gas and loose stools.
My first memory of Celiac symptoms (Although we didn’t know it then) was feeling bloated and crampy after eating Christmas dinner. I think I was turning three that year. I noticed that everyone was rubbing their stomachs and saying things like “Oh, I ate way too much!” I thought they were feeling what I was. Continue reading
All of my life, I have had teachers, parents, guide leaders etc. tell me to suck in my stomach. I always had a pot belly.
I also always had Dermatitis Herpetiformis (DH) and they called it eczema.
My moods were also affected. I would cry at the drop of a hat, fly into a temper tantrum for no apparent reason. I was constantly sick with colds, flu and every childhood disease there is. As a matter of fact I had Measles and Chicken Pox at the same time when I was only 3 months old!
I spent most of my life being the skinny kid, the skinny teenager and the skinny woman until I was put on Zyprexa (For bi-polar disorder – a mis-diagnosis)
I complained to several different doctors over the years about my inability to gain weight, chronic diarrhea, bloating, cramping and “rash”
None of the doctors could ever come up with any kind of help.
Then in 2006, it started to affect my brain! I started having moments of time where I did not recognise my surroundings, didn’t remember getting there and didn’t recognise people I knew! I thought I had a brain tumour or something and I was scared to death.
For an entire year, I could not leave my house alone. There were notes on all of our doors with my boyfriend’s cell phone number telling me that this is my house and I am safe, just call the number.
My boyfriend would talk to me and tell me anything he could think of to calm me down – that was the only time he has ever laid to me.
Finally in June of 2007, my mother watched a show on TV about a little boy who seemed to “space out” and not know where he was. His mother had taken him to several doctors and was told he was Autistic.
She refused to believe that he was Autistic and kept trying to figure it out. Finally, someone told her he might have Celiac disease and to put him on a gluten free diet. She did and he stopped having his “episodes”
My mother called me and told me about this program and told me to ask my doctor to check me for Celiac disease.
My doctor told my that there was not much chance because it is rare (?!) He sent me to another doctor anyway (I guess he figured he should humour me). The specialist did the scopes and in July of 2007, I was diagnosed, at almost 50 years of age with Celiac disease. My family doctor still has trouble believing it L
Once diagnosed (I was diagnosed with type 2 diabetes in the same month) I didn’t know what the heck I was going to eat!
Finally, after a lot of research and trial and error cooking, I figured it out and you know what? It isn’t that difficult!
I decided that I needed to share my research and recipes with others and with my younger brother pushing me; Aunt Jayne’s Blog was born. (http://www.glutenfreewithauntjayne.com) I am now a proud member of the Canadian Celiac Association and have 2 more blogs and a website (http://www.allergies-r-us.net – a site for all kinds of dietary restrictions)
I work hard to help raise awareness for Celiac disease and I hope that anyone who reads this will do the same.